Salta al contenuto
Associazione Italiana sindrome ‘X-Fragile’ onlus

Associazione Italiana sindrome ‘X-Fragile’ onlus

Sito ufficiale

Menu

  • La Sindrome X Fragile
    • Caratteristiche
    • La Diagnosi
    • La trasmissione ereditaria
    • Premutazione
      • Sindrome tremore/atassia FXTAS
      • Insufficienza ovarica precoce FXPOI
    • Centri di diagnosi e consulenza genetica
    • Ricerca scientifica
    • Informazioni sulla ricerca scientifica
    • Normative: disabilità e legislazione
  • Associazione Italiana
    • Breve storia
    • Statuto dell’ Associazione
    • Regolamento
    • Codice etico
    • Organi
    • Comitato Scientifico
    • Soci benemeriti
    • Collaborazioni
    • Sezioni territoriali
    • Bilanci
    • Informativa sul trattamento dei dati personali
    • Dichiarazione ai sensi della legge 124/2017 (art. 1, cc 125 e seguenti)
  • Cosa facciamo
    • Progetti per persone con Sindrome X Fragile
    • Progetti per famiglie
    • Progetti per la scuola
    • Progetti di ricerca
    • Tutti i progetti
    • Progetti conclusi
    • Appuntamenti e convegni
  • Libreria Fragile
    • Libreria in italiano
    • Libreria internazionale
  • Mondo X
    • Alleanza Internazionale X Fragile
    • FraXi – Fragile X International
  • Sostienici
    • 5×1000
    • Diventa Socio
  • Contatti
  • DONA ORA

Libreria (internazionale)

Fragile X Syndrome: From Genetics to Targeted Treatment

Fragile X Syndrome: From Genetics to Targeted Treatment Fragile X Syndrome: From Genetics to Targeted Treatment provides a structured overview of the molecular and clinical background of the disorder as well as treatment options. The book discusses the detailed molecular

Alessandra Airoldi 27 Agosto 201717 Novembre 2019 Libreria (internazionale) Leggi tutto

Growing Up with Fragile X Syndrome – The Road to Marty Campbell

Growing Up with Fragile X Syndrome – The Road to Marty Campbell Dr Robyn Iredale Vivid Publishing, 2011 This book provides a personal insight into the many challenges of bringing up a young man with Fragile X syndrome and also

Alessandra Airoldi 12 Marzo 201717 Novembre 2019 Libreria (internazionale) Leggi tutto

X Stories – The Personal Side of Fragile X Syndrome

X Stories – The Personal Side of Fragile X Syndrome Charles Luckman & Paul Piper Flying Trout Press, 2006 A book of stories from people who have been touched by fragile X who tell in their own words how it

Alessandra Airoldi 12 Marzo 20175 Gennaio 2022 Libreria (internazionale) Leggi tutto

My Extra Special Brother: How to Love, Understand, and Celebrate Your Sibling with Special Needs

My Extra Special Brother: How to Love, Understand, and Celebrate Your Sibling with Special Needs Autore: Carly Heyman Fragile X Association of GA, 2003 Sixteen-year-old Carly Heyman writes an endearing story of growing up with her big brother Scott, a

Alessandra Airoldi 12 Marzo 201717 Novembre 2019 Libreria (internazionale) Leggi tutto

Fragile X Syndrome: A Guide for Teachers

Fragile X Syndrome: A Guide for Teachers Autore: Suzanne Saunders This English book, by a lecturer in Special Education at Oxford, gives a comprehensive coverage of issues which arise when children with Fragile X syndrome go to school. Optimum classroom

Alessandra Airoldi 12 Marzo 201717 Novembre 2019 Libreria (internazionale) Leggi tutto

Fragile X syndrome : diagnosis, treatment, and research

Fragile X syndrome : diagnosis, treatment, and research Randi Jenssen Hagerman; Paul J Hagerman This superb book is a must for the professional with any interest in fragile X syndrome. Topics covered in the first part of the book include

Alessandra Airoldi 12 Marzo 201717 Novembre 2019 Libreria (internazionale) Leggi tutto

Children with Fragile X Syndrome: A Parent’s Guide

Children with Fragile X Syndrome: A Parent’s Guide Jayne Dixon Weber Written by leading practitioners and parents for families, teachers and other professionals working with children with fragile X syndrome. Up-to-date information helps families adjust and understand their child’s strengths

Alessandra Airoldi 12 Marzo 201717 Novembre 2019 Libreria (internazionale), Uncategorized Leggi tutto

Fragile: Handle with care: understanding fragile X syndrome

Fragile: Handle with care: understanding fragile X syndrome Braden Marcia Published by Spectra Pub. Co, 2000 This is an exceptional book written by a master in the field of special education and behavioural psychology

Alessandra Airoldi 27 Febbraio 20175 Gennaio 2022 Libreria (internazionale) Leggi tutto

Fragile X Fragile Hope: Finding Joy In Parenting A Child with Special Needs

Fragile X Fragile Hope: Finding Joy In Parenting A Child with Special Needs Elizabeth Griffin This is a publication by Elizabeth Griffin, who has a son with fragile X and autism. Many negative aspects of the journey from diagnosis to

Alessandra Airoldi 27 Febbraio 201717 Novembre 2019 Libreria (internazionale) Leggi tutto

The Broken Toy

The Broken Toy Marilyn Morgan This short book tells the story of a mother’s fight to gain the best for her son with fx. Dan was born in 1977 and the book takes us through the various stages of his

Alessandra Airoldi 27 Febbraio 201717 Novembre 2019 Libreria (internazionale) Leggi tutto
  • « Precedente

© 2018-2023

Associazione Italiana Sindrome X Fragile
sede legale: via Mario Donati, 16 – 20146 Milano
sede operativa: via Col di lana 5 – 01100 Viterbo
tel./fax. +39 02 47717104
cell. +39 347 2701084
email: info@xfragile.net
pec: info@pec.xfragile.net
IBAN: IT93H0103050241000063141996
c/c postale n. 91805523
C.F. 97133650156
Segreteria

Articoli recenti

  • Newsletter 1/2023 Attività per l’inizio del nuovo anno
  • Manifestazione di interesse Progetto Erasmus
  • Nuova partenza per il Progetto Erasmus
  • Formazione X Inclusione edizione 2022-2023
  • Newsletter 5/ 2022 1993-2023 Trent’anni di sfide e di conquiste

Archivio articoli

Copyright © 2023 Associazione Italiana sindrome ‘X-Fragile’ onlus. All rights reserved. Theme Spacious by ThemeGrill. Powered by: WordPress.
  • Segreteria